Monday, April 6, 2015

Recent Lyme News, Research, Politics, Stories, and Resources

Here's the roundup of recent news:

An n=1 Case Report of a Child with Autism Improving on Antibiotics and a Father's Quest to Understand What it may Mean  (Microbial Ecology in Health and Disease)
Related study:  Divergent Opinions of Proper Lyme Disease Diagnosis and Implications for Children Co-Morbid with Autism Spectrum Disorder(Mason Kuhn, Robert Bransfield,Research Gate)

, A Common Cause of Endocarditis:  A Report on 106 Cases and a Review
 (Journal of Clinical Microbiology)

Bartonella spp. Bacteremia in Blood Donors in Campinas, Brazil (PLoS Neglected Tropical Diseases)

Borrelia burgdorferi Not Confirmed in Human-biting Amblyomma americanum Ticks from the Southeastern United States (Journal of Clinical Microbiology)

Complex Population Structure of Borrelia burgdorferi in Southeastern and South Central Canada as Revealed by Phylogeographic Analysis
(Lindsay, Ogden, et al., Applied and Environmental Microbiology)
Drug Combinations against Borrelia burgdorgeri Persisters In Vitro:  Eradication Achieved by using Daptomycin, Cefoperazone, and Doxycycline (Paul Auwaerter, et al. PLoS One)

Ecologist Tracks Tick-Borne Diseases Beyond Their Usual Borders

Fever in a Visitor to Canada:  A Case of Mistaken (Journal of Clinical Microbiology)

Large Scale Spatial Risk and Comparative Prevalence of Borrelia miyamotoi and Borrelia burgdorferi Sensu Lato in Ixodes pacificus
 (PLoS One)

No Visible Dental Staining in Children Treated with Doxycycline for Rocky Mountain Spotted Fever  (Journal of Pediatrics)
Poison as Medicine (Discover Magazine)

Commenting on IDSA Lyme Guidelines, Part 1  (see links to Parts 2 and 3 at the bottom of the page)  DEADLINE:  April 9th
Lyme Patient Advocates Meet with IDSA President, Discuss Concerns about Guidelines Review Process (WebWire)

LYMEPOLICYWONK:  The IDSA Chooses a Token Patient for its New Guidelines Revision Process   (

LYMEPOLICYWONK:  IDSA Guidelines Revision Process - Cause for Alarm?  (Lyme

LYMEPOLICYWONK:  IDSA Guidelines Survey  (

Lyme:  Two Guidelines Compared and Contrasted 
(Society for Science-based Medicine)

Lyme:  Two Worlds Compared and Contrasted  (Science-based Medicine)

More Canadians Go Beyond the Border for Medical Treatment (Ottawa Citizen)

One Health Initiative will Unite Human and Veterinary Medicine 
(Why aren't Naturopathic Doctors included?!)
TOUCHED BY LYME:  What a Real Patient Representative Actually Looks Like  (


Avril Lavigne Opens Up About Her Health Crisis  (People Magazine)

Beyond the Headlines:  Lyme Disease  (ABC7News, San Francisco)

Don't be Fooled - Lyme Disease can Happen to You
 (The Pictou Advocate)

How a Tiny Tick Changed My Life Forever (Author Amy Tan)

If Your Dog is Suddenly Paralyzed, This Could be Why
Joni Mitchell in Intensive Care after being found Unconscious (Joni has Morgellon's)  (!/blogs/2015/3/Joni-Mitchell-in-intensive-care-after-being-found-unconscious

Lyme Disease and MS:  Similar or same? (Lyme People)

Lyme, the Heart, and Simple Screening
  (Lyme MD)

Lyme Sucks Challenge - Jan Cmela, Winnipeg 

Omega Conference Will Shed Light on Lyme Disease 
(Dr Richard Horowitz, Poughkeepsie Journal)

Rethinking Treatment of PANDAS and Similar Neuro-Immune Conditions (Dr Alex Rinehart)

Ride for Lyme:  The Adelaine Project (Daniel Corso and Tanner Cookson)

Sandflies in Iraq Infect Americans who Bring Home Lyme Disease and Multiple Co-infections
 (Lyme Disease Resource)

TOUCHED BY LYME:  The World According to Harrison

Triple Whammy Treatment Day (Adventures in Healing Blog)


Autism, Chlorine Dioxide, Radiation Exposure and Epigenetics  (Dr Dietrich Klinghardt)

New Book:  
Cannabis for Lyme Disease and other Conditions (Shelley White)

Disability Alliance BC
 - FREE assistance with disability applications and appeals

Do Yoga With Me (Michelle Yoga)

Farmacy:  Pharmaceutical Grade Medical Marijuana

Five Levels of Healing (Audio interview) (Dr Dietrich Klinghardt)

Gluten-Free Medical Expense Tracker for Celiacs (and maybe those with Lyme Disease too)  
(Squeeze of Lyme blog) (*Canadian)

LymeSavers - Deadline for bursary applications is June 30

MTHFR Gene Mutations, Part 2 (Audio) (Dr Jess Armine)

Tick Removal (LymeDiseaseUK) (*good info, but keep the tick!)

TOUCHED BY LYME:  When Lyme Disease Affects the Heart (Book Review)

What You Need to Know about Lyme Carditis (CDC)

WEBINAR:  Conversations with Marty Ross, MD
March 11, 2015


April 5:  Informal Meeting at Victoria Public Market, 1-3 pm (in the old Hudson's Bay on Douglas near Fisgard)

April 10-11:  ILADS  "Tick-borne and other Chronic Infections, Research and Practice"  Drexel University, Philadelphia PA

April 11-12:  Victoria Pet Expo - 10 - 6 on Saturday, and 11 - 5 on Sunday.  Victoria Lyme Support Group will have a booth at this event.

April 26:  Victoria Lyme Support Group Meeting  1-4 pm, near Hillside Mall Presentation on

May 2015:  Lyme Ribbons 2015

May 8-9:  International Lyme Disease Conference (ILADS) in Augsberg, Germany.
May 12:  Ride for Lyme  Starts at sunrise at Mile "0" (Douglas and Dallas Road)

October 15:  ILADS Fundamentals Course, Fort Lauderdale
October 16-18:  ILADS Annual Conference, Fort Lauderdale

October 17-18:  Neurovascular Connections - Vancouver 2015