Victoria Lyme Support Group Agenda for June 24, 2012

1. Name introductions. Welcome message. (10 min)

Updates (20 min)

2. Help Fill A Dream (HFAD) www.helpfilladream.com/ is an immediately responsive charitable foundation based in Victoria, British Columbia. (Dave)

3. BC Lyme Clinic. (Dave)

4. Elizabeth May bill. Nicole and Chris’s presentation. (Dave)

5. Webpage for our Support Group. http://victorialymegroup.blogspot.ca/ (Lisa R)

6. Dr. David Patrick’s research study for the BC CDC. (Liisa J.)

Discussion (60 min)

7. Informal Discussion (information sharing, support, orientation for newcomers, questions, ideas for upcoming meetings)
8. Lyme Support Library. Should we start our own Library of informative books? Any donations of books, or suggestions of books to purchase?
For example:
No such thing as Chronic Lyme disease? Medical professionals may be interested in the new book, "Treatment of Chronic Lyme Disease: Fifty-One Case Reports and Essays in Their Regard." Written by Founding member and Fellow of the Infectious Diseases Society of America, you may remember Dr. Burton Waisbren and his article, "The Emperor’ s New Clothes, Chronic Lyme Disease, and the Infectious Diseases Society of America", which you may read on Waisbren Clinic's website. Here's a link to the new book, also available for Kindle.
http://www.prweb.com/releases/2012/2/prweb9221296.htm
There is wholesale pricing on this book if people are interested in us doing a bulk order to give copies to your GP…

Information
9. Dr. Murakami’s reasons for optimism in the medical community:
Ernie Murakami, June 3, 2012, Some reasons for optimism with the " Medical Divide "

The majority of medical doctors are still adamant about the Lyme situation and fearful to treat but there are things happening slowly but gradually:
The Brian Schmidt reportPeer reviewed animal studiesDr Pat McGeer’s post mortem report culturing of live spirochetesmany of the Naturopathic Physicians are on board in Canada with prescription priveleges in B.C. and hopefully soon in other provinces.The Manitoba Government recently had a Lyme disease Symposium with equal representation of LLMDs and non-LLMDs and I know some non-believers are opening their minds about chronic Lyme disease being an infection. This may have been the first meeting with equal representation from both sides of the Medical divide.There are 7 American States with laws protecting LLMDs from harrassment, investigations and suspension of licences with some States the doctors have voluntarily shelved the IDSA guidelines.In England one of my LLMD associates had a court case dropped due to inadequate evidence by the non Literate complainers.John Scott has done extensive studies of migratory birds carrying ticks which are spreading vector borne diseases on a continuous daily basis in North America.The Boucher Institute has and will continue with my teaching about Lyme disease to the graduating students on an annual basis.
10. In the news: The provincial government routinely fails its legal duty to promptly inform citizens of risks to public health and safety, warn legal scholars at the University of Victoria. Includes Lyme disease.
http://www.vancouversun.com/health/Hume+taken+task+failure+inform+public/6735884/story.html

11. Lyme Disease Association of BC, LDABC has been formed by a Lyme sufferer in Vancouver.
Show newsletter.

12. . Dr. Garth Nicolson’s views on Mycoplasma infection:
http://www.immed.org/NewsReports/NewsReports03.2010update/PHA_Nicolson_0709_v4_07.pdf

13. Fermented Foods:
http://www.youtube.com/watch?v=Qx3tEBo8rJU&list=PLDD4048C9AD78EBBD&feature=plcp
This 6 part New Zealand youtube series is full of wonderful information about probiotics and fermented foods, and how to easily make your own in your own kitchen for pennies!

14. Oil of Oregano. http://curingherbs.com/wild_oregano_oil.htm
Has anyone tried this form of natural antibiotic?
Facebook comments:
Chris- great for sore throats and dental spirochetes
Sheri- Great for removing yeast off tongue too.
Cathy- Have a bottle and did the Massage into shoulders for my tendonitis and the scar and big toe where I had a bunion removed in 2004, (toes been feeling broken for weeks) & OMG...pain is virtually 90% gone!!!! So anyone with joint pain, this really does provide relief!!!

15. Next meeting: July 22, 2012 6:00-8:00pm Four Mile Pub Tea Room

Victoria Lyme Support Group Agenda for April 22, 2012

1. Name introductions. Welcome message. Dave – What is happening on political front.

Liisa – Health support, organizational duties, meeting chairperson.

2. Dave - HFAD. www.helpfilladream.com/ Help Fill A Dream is an immediately responsive charitable foundation based in Victoria, British Columbia.

3. Symptoms lists of Co-infections: http://www.lyme-symptoms.com/LymeCoinfectionChart.html

4. Dave - Update on BC Clinic.

5. Dr. Schallers Reasons why Lyme treatment fail: http://www.publichealthalert.org/Articles/jamesschaller/18_reasons_lyme_treatments_fail.htm

6. Dave - Kirsty Duncan update.

7. LYME CENTS. Fundraiser: Ideas on how to get them?

8. Update on Webpage for our Support Group.

9. Dr. Neil McKinney (Mackenzie/Shelbourne) http://drneilmckinney.ca/ Coming to give lecture at next meeting May 27 6pm. Four Mile Pub Tea Room.

10. Dr. Klinghardt and his understanding of treatment order. Largest organism to smallest. Playback number 530-881-1399. If you would like to get the password to access this latest telephone conference call, email victorialyme@gmail.com

11. Supplements: Some have found these supplements helpful:
Sacchoromyces, Milk Thistle, Magnesium Oil, CoQ10

12. NEW RADIO TALK SHOW FEATURING ... our very own Dr. Murakami. Tune in to http://www.blogtalkradio.com/in-short-order every Sunday from 7-9pm EST (4-6pm PST) to hear what Dr. Murakami has to share about Lyme disease.

13. Next meeting: May 27, 2012 6:00-8:00pm Four Mile Pub Tea Room

14. Informal Discussion

NEW RADIO TALK SHOW FEATURING ... our very own Dr. Murakami

The good doctor is reaching out using a new medium! Dr. Murakami is going to be hosting a radio talk every Sunday from 7-9 pm EST on the In Short Order radio show for health care professionals at BlogTalkRadio. In case you're wondering what, exactly, BlogTalkRadio is, here's some info taken directly from their website:

BlogTalkRadio allows anyone, anywhere the ability to host a live talk radio show online... (It) empowers citizen broadcasters to create and share their original content, their voices and their opinions in a worldwide public forum. Today, BlogTalkRadio is the largest and fastest growing online talk radio network. A truly democratized medium, BlogTalkRadio has tens of thousands of hosts and millions of listeners tuning in and joining the conversation each month.

Tune in to http://www.blogtalkradio.com/in-short-order every Sunday from 7-9 pm EST to hear what Dr. Murakami has to share about Lyme disease.

Victoria Lyme Support Group Agenda for February 19, 2012

1. Name introductions.  Dave and Liisa’s roles defined in the Group.    Dave – Leader of Fighting Force, what’s happening on the political front.

    Liisa – Health Support, organizational duties & meeting chairperson.

2. Define Group’s Focus.  Treatment options, supplements, what is happening in our community for awareness and politically.

       

3. Update on Donations/Monies and Tax Receipts and CanLyme role.

    Printout from Dave and his communication with Janet Sperling from CanLyme.

   

4. Update on BC Clinic from Dave – March 5 Director choosing meeting?

5. Update on Awareness for Group Meetings?  Ideas for campaigning/advertising our group.  Newspaper ads, Usedvictoria, Craigslist, ND’s

6. Webpage for our Support Group, or for BC Support Groups? Possibly Dr. Murakami can help us with this, and a page on his website.

    Email from Chris Powell, perhaps Nicole will start a webpage for us?

    Chris suggests VILE – Vancouver Island Lyme Education? 

7. Confidential Lyme Registry – danceintherain.ca.  Being done by the Richmond Hill, ON Lyme Disease Support Group. 

    Could people at the group please look into sending Josephine an email?

8. Community Acupuncture (Fisgard) sliding scale $20-50.  Stillpoint Community Accupuncture in Langford.  Coupon for Awakening Wellness Centre.

9. Handout: Interesting points from Dr. Burrascano’s slide show from ILADS conference.  (IGeneX labs, CD57, Required Supportive Measures)

10. Interesting points from Dr. K’s teleseminar from Oct 2011.  Handouts available.

11. Dr. Kirsty Duncan helped get MS proper recognition in Canada and is now working on Lyme Disease.  Read her request to the federal govt. here:

    http://www.danceintherain.ca/canada-lyme-disease/

12. Informal Discussion

Next meeting:  March 18, 2012 6:00-8:00pm  Four Mile Pub Tea Room