Victoria Lyme Awareness and Support Group Sunday, AGENDA for August 26

Please see below for the agenda that will be discussed at the meeting.

A reminder of the upcoming meeting of the Victoria Lyme Awareness and Support Group Sunday, August 26, 6 to 8 pm.

We are switching things up for the August meeting and having the support group at the following vegetarian restaurant in Market Square bottom level:

GREEN CUISINE, #5 - 560 Johnson St, Market Square, Victoria BC 250-385-1809

Green Cuisine is mainly self serve with the plate/bowl weighted at check out. The ingredients are listed for each food. FREE PARKING. (Remember we are welcome regardless of whether we order food) You can find the menu at http://www.greencuisine.com/todays_menu

Victoria Lyme Support Group Agenda for August 26, 2012

1. Name introductions. Welcome message. (10 min) Unpaid Bill from June 24 - pear salad - has this been resolved? (Dave).

Updates (20 min)

2. Help Fill A Dream (HFAD) is an immediately responsive charitable foundation based in Victoria, British Columbia. (Dave)

www.helpfilladream.com/

3. BC Lyme Clinic. Nothing new to report (Dave)

4. Elizabeth May National Lyme Strategy bill.

track the bill's progress on this link:

http://www.parl.gc.ca/LegisInfo/BillDetails.aspx?Language=E&Mode=1&billId=5688264

How can each one of us help Elizabeth pass this bill?

• Find out who your federal MP is. Click here.
• Contact your federal MP and if at all humanly possible set up a face-to-face meeting.
• Tell them your story as briefly as possible.
• Tell them you know others across Canada in the same predicament.
• Tell them you are being denied your right to health care.
• Ask if you can count on their support to get this bill passed.
• Make sure your MP knows this is not just a 'Green' party bill, it is a bill that could affect every single Canadian including themselves, or their loved ones
• Remind your MP to vote with their conscience as this is a private member's bill; no party vote needed.
• Respond back to Chris Powell (Nicole Bottles' mom) with name of your MP after you have contacted them and if you feel you have their support or not. Either leave a comment here or contact me at cpowellworld@aol.com.

5. Webpage for our Support Group. http://victorialymegroup.blogspot.ca/ (Lisa R. adds agendas to this blog page)

ALSO

Name suggestions for Vancouver Island Lyme Webpage: vilymeinfo.ca OR vilyme.ca OR vancouverislandlymeeducation.com

At the last meeting the consensus was for the first URL to be used: vilymeinfo.ca, if no one voices any complaints or other better suggestions that the group likes, this will be the one we go with.
Discussion (60 min)

6. Lyme Support Library. $10 to join the library, one book out at a time, to be returned at next meeting.

Any donations of books, or suggestions of books to purchase?

Currently in circulation:

Lyme Disease and Rife Machines

The Top 10 Lyme Disease Treatments

What does the Bible really teach?

Adult Children of Alcoholics

The Healthy Home

Good News from God

Homecoming: Reclaiming and Championing your Inner Child

It's All in Your Head - Around the World in 80 Lyme Patient Stories

Insights into Lyme Disease Treatment

7. Importance of Sleep to healing:

The following excerpt has some helpful suggestions on getting enough sleep:

http://www.lymebook.com/lyme-disease-sleep-insomnia

Some more suggestions can be found here:

http://www.wellsphere.com/lyme-disease-article/the-sleep-cycle-and-healing-from-lyme-disease/31581

Maclean's magazine had an interesting article on sleep:

http://www2.macleans.ca/2012/08/08/on-how-animals-sleep-the-real-olympic-advantage-and-why-men-rest-easy/#more-279528

8. Canlyme has a new webpage design, and it is much easier to navigate now!

www.canlyme.com

I like the section 'living with lyme'.

Information

9. http://www.livinglyme.com

A very interesting website with tons of information:

I look forward to trying some of the recipes from their very comprehensive recipe book:

http://www.livinglyme.com/files/Download/Living-Lyme-Kitchen.pdf

10. Another great cookbook that is being talked about in Lyme communities:

http://www.recipesforrepair.com/

11. An article by Dr. Mercola on Lyme Disease with many of Dr. Klinghardt's views:

http://www.care2.com/greenliving/why-is-lyme-disease-not-just-tick-borne-anymore.html?page=1

If anyone would like an email of this article in a Word Document, just let me know.

12. From Facebook tip of the day:

Dr David Jernigan

Health tip of the day: The tongue can reveal much of what is going wrong in the body. For instance, go to the mirror and lift up your tongue so that you can see underneath. If you see blue/black veins on the bottom side of the tongue it means that you likely are suffering from hyper-coagulation (Thick blood) and blood stagnation. In a healthy individual no veins should be visible under the tongue.

According to David Berg, founder HEMEX Labs, 90% of Lyme, Fibromyalgia and Chronic Fatigue Patients have hyper-coaguable (thick blood). About 20% of people with these illnesses may have a genetic defect leading to hypercoagulation and biofilm development.

The most researched and reliable way to address hyper-coagulation is by using the nutraceutical called Lumbrokinase. This is a safe systemic enzyme that can be taken as directed on the bottle or as your doctor recommends for years if necessary. You can order Lumbrokinase by calling the Hansa Center or your doctor. Of course, do not take this if you are already taking prescription blood thinners or have a bleeding disorder.

13. Informal Discussion (information sharing, support, orientation for newcomers, questions, ideas for upcoming meetings)

14. Next meeting: September 23, 2012 6:00-8:00pm Four Mile Pub

Elizabeth May (MP-Green Party) to Introduce "National Lyme Strategy" Bill

On Wed. June 20th, 2012 in Ottawa, Elizabeth May is planning to introduce a private member's bill relating to Lyme disease. Look for a press conference that day and the reading of the bill by Elizabeth to our federally elected MP's later the same day.
Nicole and I saw a rough draft of the bill last week. It is still being worked on by Elizabeth and her team, including legal advisers in order to make sure there aren't any loop holes to be picked apart when it comes time to vote sometime between September 2012 - March 2013. Upon the passing of the bill, a conference will be convened to develop a National Lyme Disease Strategy with patient group representatives, medical and provincial health ministers in attendance. The conference would address the challenges of recognition, timely diagnosis and treatment of Lyme disease. 
The bill is multi-faceted, with detailed timelines that require adherence by the Federal Minister of Health at various stages, including when the conference must be convened, when the health minister would report back to MP's, timeline for posting new national strategy on the official gov't website, and many other critical details ensuring the job is done right.
In our meeting, Elizabeth May asked what other suggestions we would like to see. We stated if only the IDSA archaic guidelines were listed, the bill would not serve a purpose, unless it reflected the 'two standards of care', ILADS and IDSA. Canlyme has been consulted at length by Elizabeth to make sure patient's interests will be heard.
We also expressed the need for protection for doctors who wished to treat patients with Lyme disease using the standard of care they felt best benefited the patient.  
Elizabeth is allowed to introduce one private member's bill in her four year term. She has chosen to help Canadians with Lyme disease get their right to health care back.
  How can each one of us help Elizabeth pass this bill?
We ALL need to do the following and ask for friends, & family wherever they live in Canada to do the same to support you and get this National Lyme Strategy Bill passed.
1. Find out who your federal MP is. Click here.
2. Contact your federal MP and if at all humanly possible set up a face-to-face meeting.  
-Tell them your story as briefly as possible.  
-Tell them you know others across Canada in the same predicament.  
-Tell them you are being denied your right to health care.  
-Ask if you can count on their support to get this bill passed. 
-Make sure your MP knows this is not just a 'Green' party bill, it is a bill that could affect every single Canadian including themselves, or their loved ones.  
Remind your MP to vote with their conscience as this is a private member's bill; no party vote needed.   
3. Respond back to Chris Powell (Nicole Bottles' mom) with name of your MP after you have contacted them and if you feel you have their support or not. Either leave a comment here or contact me at cpowellworld@aol.com. 
Many thanks everyone for doing your part in getting this legislation passed. I believe it is possible with the vast lyme network across Canada. Elizabeth May has started the ball rolling. It's up to us to keep it rolling! 
 Contact friends, family, acquaintances, people in your local communities. Let them know how important support is. Ask them to contact their MP. 

"Do your little bit of good where you are; it's those little bits of good put together that overwhelm the world." 

~Archbishop Desmond Tutu

Special Guest Dr Neil McKinney, Sunday, May 27, 6 to 8 pm

We have a special visitor this month at our meeting: Dr. Neil McKinney ND (http://drneilmckinney.ca) is going to be giving us a lecture!

Please RSVP  so we can get a proper feel for the amount of people coming and arrange enough seating.

6 PM for dinner (if you'd like)

Four Mile Restaurant - Tea Room

199 Island Highway, Victoria, BC

250 479-2514

Ask for the TEA room, which is reserved under "Victoria Lyme". If you are ordering dinner we would like to order it right away.

This is what he said to us about speaking to our Group:

"Like other NDs in BC I have only been able to step up and prescribe antibiotics for Lyme for about a year and a half. So I am working hard to become Lyme Literate. I have a few mentors, Dr. Ernie Murakami of course, and Dr. Usha Honeyman ND from Corvallis Oregon is helping me with cases. I hope to bring her up for a clinic soon. I have practiced 27 years now, so I do have a lot of experience with Lyme cases, but not so much with drug therapies. I am working hard on strategies to reduce antibiotic use and shift more to natural medicines, which I hope will prove less toxic and more rapidly curative."

Victoria Lyme Support Group Agenda for February 19, 2012

1. Name introductions.  Dave and Liisa’s roles defined in the Group.    Dave – Leader of Fighting Force, what’s happening on the political front.

    Liisa – Health Support, organizational duties & meeting chairperson.

2. Define Group’s Focus.  Treatment options, supplements, what is happening in our community for awareness and politically.

       

3. Update on Donations/Monies and Tax Receipts and CanLyme role.

    Printout from Dave and his communication with Janet Sperling from CanLyme.

   

4. Update on BC Clinic from Dave – March 5 Director choosing meeting?

5. Update on Awareness for Group Meetings?  Ideas for campaigning/advertising our group.  Newspaper ads, Usedvictoria, Craigslist, ND’s

6. Webpage for our Support Group, or for BC Support Groups? Possibly Dr. Murakami can help us with this, and a page on his website.

    Email from Chris Powell, perhaps Nicole will start a webpage for us?

    Chris suggests VILE – Vancouver Island Lyme Education? 

7. Confidential Lyme Registry – danceintherain.ca.  Being done by the Richmond Hill, ON Lyme Disease Support Group. 

    Could people at the group please look into sending Josephine an email?

8. Community Acupuncture (Fisgard) sliding scale $20-50.  Stillpoint Community Accupuncture in Langford.  Coupon for Awakening Wellness Centre.

9. Handout: Interesting points from Dr. Burrascano’s slide show from ILADS conference.  (IGeneX labs, CD57, Required Supportive Measures)

10. Interesting points from Dr. K’s teleseminar from Oct 2011.  Handouts available.

11. Dr. Kirsty Duncan helped get MS proper recognition in Canada and is now working on Lyme Disease.  Read her request to the federal govt. here:

    http://www.danceintherain.ca/canada-lyme-disease/

12. Informal Discussion

Next meeting:  March 18, 2012 6:00-8:00pm  Four Mile Pub Tea Room