Monday, September 19, 2016

September Lyme Meeting Sunday Sept 25 1-3 pm

There will be Lyme disease support group meeting on Sunday, September 25th, from 1-3 pm near the Hillside Mall. Contact victorialyme@gmail.com for details and directions.

If you'd like to bring a healthy snack to share, that would be appreciated. Coffee and tea will be provided.

FYI: Our October meeting will be a presentation by Dr. Jasmine Wong, ND. 
Topic - Co-Infections: Signs, Symptoms and Testing

We hope to see you all there.
All the best.

Monday, July 25, 2016

July and August meetings cancelled

Due to summer holidays and busy schedules we will not be having a Lyme Support Meeting this Sunday July 24th, or next month, Sunday, August 28th.  I have contacted several speakers, but I have not been able to schedule any presenters during the busy summer months.  I do apologize for any inconvenience this has caused.

If anyone is in need of immediate support, I am available by phone, or depending on the date, possibly in person. Please email victorialyme@gmail.com to make arrangments.

You are welcome to put forward agenda items for September’s meeting. 

I hope you all have a safe and pleasant summer.

All the best,
Victoria Lyme Awareness and Support Group facilitators

Sunday, June 19, 2016

Agenda June 26

There will be a meet and greet support group next Sunday, June 26, from 1-3 pm near the Hillside Mall, Contact victorialyme@gmail.com for directions and parking information.

We would like to invite any new or existing members who might want to meet Maria Boorman and Beverly Seip.  Maria is a Lyme Literate Naturopathic Physician from Victoria.  Maria will be in attendance for approximately 30 minutes to meet new members, or any of those who have not had their Lyme testing done, and may still need to choose a Lyme Literate Naturopathic Doctor (LLND).  Please try to arrive on time if you wish to meet Maria as we are not sure what time she will be at the meeting, and you won't want to miss out.  

Beverly is a Registered Acupuncturist, Certified Laser Therapist and Nutritionist from Young Health in Duncan.  Beverly is also a member of our group, and will be in attendance to meet any members who would like to hear a little bit about some of the services that she offers that may help you with your treatment protocols.

This is also an opportunity for members to meet and greet each other.  We have several new members in our group, and it would be nice if some existing members were in attendance to help answer questions, and to get to know each other.  We are all here to support each other and share our experiences.

If you'd like to bring a healthy snack to share, that would be appreciated. Coffee and tea will be provided.

Please remember not to wear fragrances, as some people are sensitive.  

You are welcome to put forward agenda items for July’s meeting. 

We hope to see you all there.

Wednesday, February 3, 2016

Recent Lyme News, Research, Politics, Stories and Resources Feb 2016

RESEARCH NEWS AND JOURNAL ARTICLES

230 Peer-Reviewed Studies Show Evidence of Persistent Lyme Disease (NorVect)

Borrelia burgdorferi Surface-Exposed Transmembrane Protein Lacking Detectable Immune Responses Supports Pathogen Persistence and Constitutes a Vaccine Target (Journal of Infectious Diseases)

An Expanded Reverse Line Blot Hybridization Protocol for the Simultaneous Detection of Numerous Tick-Borne Pathogens in North America (Oxford Journals, Journal of Medical Entomology)

Cardiac Magnetic Resonance Charcterizes Myocarditis in a 16-year-old Female with Lyme Disease  (World Journal for Paediatric and Congenital Heart Surgery)

Development of a Metabolic Biosignature for Detection of Early Lyme Disease (Oxford Journals, Clinical Infectious Diseases)
and an article about this study:
A Biosignature of Early Lyme Disease (Spirochetes Unwound)

Effectiveness of Residential Acaricides to Prevent Lyme and Other Tick-Borne Diseases in Humans  (Oxford Journals, Journal of Infectious Diseases)

Evaluation of a New Multiparametric Microspot Array for Serodiagnosis of Lyme Borreliosis (PubMed,Clinical Laboratory)

Flow Tolerant Adhesion of a Bacterial Pathogen to Human Endothelial Cells Through Interaction with Biglycan (PubMed, Journal of Infectious Diseases)

Identification of Novel Zoonotic Activity of Bartonella app., France  (CDC, Emerging Infectious Diseases)

Impact of Spring Bird Migration on the Range Expansion of Ixodes scapularis Tick Population. (Hindawi Publishing Corp)

Isolation of Live Borrelia burgdorferi sensu lato Spirochaetes from Patients with Undefined Disorders and Symptoms Not Typical for Lyme Disease  (PubMed, Clinical Microbiology and Infection) 

Linkages of Weather and Climate With Ixodes scapularis and Ixodes pacificus (Acari: Ixodidae), Enzootic Transmission of Borrelia burgdorferi, and Lyme Disease in North America. (Journal of Medical Entomology)

Lyme Disease-Related Intracranial Hypertension in Children: Clinical and Imaging Findings  (ProHealth)

Medical Group First to Find Bacteria Unseen in Humans (Air Force Medical Service) 

Morgellons Disease:  The Search for a Perpetrator  (Marianne J. Middelveen and Raphael B. Stricker, Atlas of Science)

Parry-Romberg Syndrome:  A Case with a Possible Association with Lyme Disease (Acta Dermatovenerologica) 

Partially-Fed Ticks that then Re-attach to a New Host Can Transmit Lyme Disease within 24 Hours, 83% of the Time According to Study (CanLyme, Int'l Journal of General Medicine)

Suppression of Long-Lived Humoral Immunity Following Borrelia burgdorferi Infection. (Rebecca A. Elsner, Christine J. Hastey, Kimberly J. Olsen, Nicole Baumgarth,  PLOS Pathogens )
and here's an article about this study:
Lyme Induced Immune Suppression Brings Lyme Tests into Question (Cort Johnson, Health Rising)

The Need for Clinical Judgement in the Diagnosis and Treatment of Lyme Disease  (Journal of American Physicians and Surgeons)

Tick-borne Disease Preventive Practices and Perceptions in an Endemic Area (ScienceDirect)

Ticks Parasitizing Gallinaceous Birds in Caada and First Record of Borrelia burgdorferi-infected Ixodes pacificus (Acari: Ixodidae (John D Scott et al, Systemic and Applied Acarology)


LYME POLITICS AND CONTROVERSIES

2015 Google Searches on Lyme Disease Jump to Their Highest Level (Daniel Cameron, MD)

Bill Would Set Standards for Treatment of Lyme Disease (Channel 3000, Wisconsin)

FDA Invites Patient Organizations to Take a Place at the Podium (Food and Drug Administration)

Looking for Canadian Input: Survey on the Treatment of Lyme Disease Outside of Canada that Canadians have had to Seek Due to Lack of Help in Canada (CanLyme.com, Dr Lloyd Vett, Mount Allison University)

Lyme Disease Costs More than $1.3B Per Year to Treat, Study Finds (Johns Hopkins School of Public Health)

Lyme Patients to Call on Congress for Decisive Action on Epidemic (WebWire)

LYMEPOLICYWONK:  2500 People Have Enrolled in MyLymeData, Have You?  (YES, all Canadians should enrol!)  (LymeDisease.org)
Related:  Why I Signed Up for MyLymeData, and Why You Should Too  (LymeDisease.org)

LYMEPOLICYWONK:  Zika, Ebola, and Lyme - What do They Have in Common?  (LymeDisease.org)

Man Dies From Lyme Disease: 'No One Wants to Talk About It' (Huffington Post)

Overruled:  Canadian Physician Slapped on the Hand for Not Following IDSA Guidelines.  Appeal Decision Said He Does Not Have to Follow Those Guidelines.   (CanLyme.com)

Patients Should be Warned of Lyme Disease Complications, Including Encephalopathy  (Daniel Cameron, MD) 

Raphael Stricker, MD, Speaks about MyLyme Data (LymeDisease.org/YouTube)

Screening Begins for Babesiosis in Donated Blood (Vineyard Gazette)

Virginia Must Now Disclose the Flaws in Lyme Disease Testing (Richmond Times-Dispatch)


OTHER NEWS, REPORTS & STORIES

Dreams Derailed by Lack of Lyme Diagnosis and Treatment (LymeDisease.org)

Dr Neil L. Spector, Renowned Cancer Researcher, Joins Global Lyme Alliance's Scientific Advisory Board  (BenZinga)

Knocked for a Loop, He's Fighting Back (News Gazette)

Levaquin Users Slap $800M RICO Suit Claiming Pharma Giant Hid Serious Side Effects (Fierce Pharma)

Severe Lyme Arthritis:  Gagging on GAGs (Glucosaminoglycans)  (Spirochetes Unwound)

Teen Uses Photography to Help Deal with Health Issues (Reading Eagle)

This is the Horror that is Lyme Disease (The Hamilton Spectator)

Voice from the Mountaintop, Dr Heiner Fruehauf, on Traditional Chinese Medicine and Lyme   (Lyme Nation)


RESOURCES

CanniMed Receives Approval from Health Canada to Sell Cannabis Oil (Global News)

Dr Cheney:  Balance the Immune System (Th1/Th2) (Environmental Illness Resource)
Related article from 2002:
Modulatory Effects of Macrolide Antibiotics on the Th1- and Th2-Type Cytokine Production (PubMed, International Journal of Antimicrobial Agents)

How These Herbs Help You Stop a Lurking Chlamydia pneumoniae Co-infection  (Greg Lee, Goodbye Lyme)

Klnghardt Lyme Cocktail  (Better Health Guy)

MAGAZINE:  "The Lyme Times" (free for LymeDisease.org members)

NEW BOOK: "In the Crucible of Chronic Lyme Disease" by Kenneth Liegner, MD.

NEW BOOK: "Lyme Loonies" by David Skidmore

NEW BOOK:  "Shifting the Lyme Paradigm, The Caretaker's Guide Through the Labyrinth" by Huib Kraaijeveld

NORVECT 2015 Videos (24 presentations and 4 panel discussions) - watch all for 499 Norwegian Krones.

'Tired of Lyme' Interviews Stephen Buhner about the 2nd Edition to His 2005 Book "Healing Lyme", "Healing Lyme: Natural Healing of Lyme Borreliosis and the Coinfectios Chlamydia and Spotted Fever Rickettsiosis"  

Transfusional Medicine for Lyme and Co-infections, Part 1 (Lyme Nation)

VIDEO:  Conversations with Marty Ross, MD - January 6, 13, and 20, 2016 

VIDEO: Dr Dietrich Klinghardt, May 23, 2015 at a conference on Autism (Bravo Probiotic)

VIDEO:  Dr Ernie Murakami 2015 Presentation at Neurovascular Connections (YouTube)

VIDEO:  Dr Eva Sapi (Lyme Ninja Radio)

VIDEO:  Dr Paolo Zamboni 2015 Presentation at Neurovascular Connections (YouTube)


UPCOMING EVENTS

February 20, 2016 - Dr Dietrich Klinghardt - Lyme Solutions Seminar, London, UK

February 28, 2016 - Victoria Lyme Disease Awareness & Support Group Meeting, 1-3 pm
near Hillside Mall , contact victorialyme@gmail.com for directions.

March 3-5, 2016, San Diego, CA - Navigating Complex Chronic Illness (Forum for Integrative Medicine) Speakers to include Dietrich Klinghardt MD, Ann Corson MD, Kristine Gedroic MD, Steve Harris MD, Tom Moorcroft DO, Michael Lebowitz DC, Raj Patel MD, and many others.

May 16-17, 2016 – Federal Framework on Lyme Disease Conference


DISCLAIMER:  We are not doctors and as such, do not offer any medical advice. Please discuss any potential changes to your treatment protocol with your doctor.