Wednesday, July 8, 2015

Recent Lyme News, Research, Politics, Stories, and Resources

Alternative Tests May Not Reliably Diagnose Lyme Disease (Medscape) (the Comments section is worth reading)

Bartonella quintana Aoritis in a Man with AIDS, Diagnosed by Needle Biopsy in 16S rRNA Gene Amplification (Pub Med, from Journal of Clinical Microbiology)

B-Lymphocyte Depletion in Myalgic Encephalopathy/Chronic Fatigue Syndrome.  An Open-Label Phase II Study with Rituximab Maintenance Treatment (PLOS One)
and here's an article about this study from New Scientist:
Antibody Wipeout Found to Relieve Chronic Fatigue Syndrome

Centre for Clinical Research Completes Lyme Disease Trial  (Vineyard Gazette)

Chronic Fatigue Patients Suffer 3 Major Brain Abnormalities   (Medical Daily)

Chronic Lyme Disease?  Cancer Meds Could Battle It (Nature World News)
and here's the journal article they refer to:
Borrelia burgdorferi, the Causative Agent of Lyme Disease, Forms Drug-Tolerant Persister Cells (Antimicrobial Agents and Chemotherapy)

Growth Inhibiting Activity of Volatile Oil from Cistus creticus L. against Borrelia burgdorferi s.s. in vitro (Die Pharmazie)
Inhibition of the Endosymbiont “Candidatus Midichloria mitochondrii” during 16S rRNA Gene Profiling Reveals Potential Pathogens in Ixodes Ticks from Australia  (Parasites and Vectors)

Neutropenia in Congenital and Adult Babesiosis  (American Journal of Clinical Pathology)

New Alzheimer's Treatment Fully Restores Memory Function  (Science Alert)

Ocular Signs of Lyme Disease (Livestrong)

Not new, but useful to share with your GP:
Proof that Chronic Lyme Disease Exists (Dr Daniel J Cameron in Interdisciplinary Perspectives on Infectious Diseases)

Serological Investigation of Heartland Virus  (Bunyaviridae phlebovirus) Exposure in Wild and Domestic Animals Adjacent to Human Case Sites in Missouri, 2012-2013 (American Journal of Tropical Medicine and Hygiene)

Seroprevalence of Bartonella henselae in Patients Awaiting Heart Transplants in Southern Italy.  (Journal of Microbiology, Immunology, and Infection)  

Study Highlights 'Important Safety Issue' with Widely Used MRI Contrast Agents

The vls Antigenic Variation Systems of Lyme Disease Borelia; Eluding Host Immunity Through Both Random, Segmental Gene Conversion and Framework Heterogeneity (National Center for Biotechnology Information)

Tick Infection Epidemic Among American Indian Tribes in Arizona  (MedLine Plus)

UF Researcher Finds Virus Thought Long Dead in Area Ticks (Ocala Star Banner, FL)


Are the Deer to Blame?   (Bay Area Lyme)

FDA Recommends Screening Blood Donors Nationwide for Babesia  (Transfusion News)

History was Made, A Precedent, for All Lyme Disease Patients  (Lyme Aware)

Lyme Disease Guidelines Panelist Suggests Ways to Handle Chronic Lyme Disease Patients (Dr Daniel J Cameron)

Maine Legislature Clears Way for Long-term Lyme Disease Treatment  (Portland Press Herald)

(Congresswoman) Pingree Pushes CDC to Develop Better Test for Lyme Disease, Do More Research into Long-Term Symptoms

Posters Stating "Danger - Lyme Disease" in Leigh Woods are Misleading, Says National Trust (Bristol Post, UK)

Register to be a Stakeholder with the Public Health Agency of Canada's Consultation and Stakeholder Information Management System

Seller of "Miracle Mineral Solution" Convicted for Marketing Toxic Chemical as a Miracle Cure (US Department of Justice)

This study from 1988 concluded that "the presence of chronic Lyme disease cannot be excluded by the absence of antibodies against B. burgdorferi and that a specific T-cell blastogenic response to B. burgdorferi is evidence of infection in seronegative patients with clinical indications of chronic Lyme disease."  They knew this 27 years ago.  Lyme is a political disease.  
Seronegative Lyme Disease. Dissociation of Specific T- and B-Lymphocyte Responses to Borrelia burgdorferi

Watch NY State Senator Serino's Lyme Forum  (


19 Year Old Victoria Teen has Fought Lyme Disease for Six Years (CHEK News)

Avril Lavigne Breaks Down Interview about Lyme Disease (Huffington Post)

Avril Lavigne Brings Light to Lyme Disease Concern in Canada   (The Weather Network)

Avril Lavigne's Lyme Battle is Re-aired on CJOB Winnipeg, Followed by an Interview with Jim Wilson, CanLyme President

Dr R Horowitz on The Today Show 

How to Protect Horses from Lyme Disease (The Horse)

Invasion of the Tiny Ticks with a Bite that Could Wreck Your Health for Years (Daily Mail UK)

Monster in the Woods:  Scientist Hunts Down Answers About Lyme Disease (Janet Sperling is interviewed)

Rising Number of Dogs in York with Lyme Disease, Vet Warns  (York Region, ON)

Springhill, NS:  Ticks BecomeTalk at Springhill Search and Rescue Hall

The Lyme Disease and Fibromyalgia Connection (Women's Health)

The World According to Harrison  (for fun!)

This is What It's Like to Live with an Illness that's Not Officially Recognized  (The Glow, AUS)

What It's Really Live with Morgellons Disease (People)

What Life with Chronic Lyme Disease Really Feels Like (Grind TV)

Cyclists Take on Lyme Disease as They Cycle Across Canada (CHEX TV)

Donate to Ride for Lyme

Lyme Disease Cross-Canada Trek Coming to Peterborough (My Kawartha)

Lyme Disease Focus of Fundraising Cyclists  (CBC, PEI)

Ride For Lyme - The Adelaine Project  (Donate, Get Involved, LiveTrack, Our Mission)

Ride for Lyme Facebook Page - read the daily dedications and see photos of their trip across Canada


A New Approach to Treating MS Patients  (Autonomic Specialists)

Are You Harbouring Bacteria in Your Teeth?  (Sr David Jernigan)

Avoid Dangerous Interactions When Taking Supplements  (Suzy Cohen, RPh)

Borrelia burgdorferi - Material Safety Data Sheets (MSDS)
*note that it mentions "can survive up to 48 days at 4°C in human blood processed for transfusion"

Central Nervous System Lymphatic Vessels  (Nature)

Copper Toxicity (Theresa Vernon)

Doctors Need to be a Little Bit Smarter When it Comes to Lyme - Dr Richard Horowitz (Lyme Ninja Radio)

Feeling Good is So Close  (Audio) (Lyme Less Live More)

Glutenza  (a new product being promoted for gluten sensitivities) 

Herbs for Stopping Relapsing Anemia Symptoms Caused By Babesia, Bartonella, or Mycoplasma (Goodbye Lyme)

Histamine:  Mast Cell Disorder of Methylation Imbalance?  (Samantha Gilbert)

Is Toxic Mold Exposure the Cause of Your Symptoms?  (Dr Jill Carnahan)

KU/HPU:  A Major Piece of the Puzzle in Overcoming Chronic Lyme Disease (from 2010)

Make a Lyme Quilt Square for the Lyme Quilt  

Medicinal Benefits of Reishi Mushroom (Suzy Cohen, RPh)

Multiple Sclerosis and Lyme Disease  (Emax Health)

Removing Dental Amalgams (Silver Fillings) While Enduring Lyme Disease (Public Health Alert)

Sawyer Permethrin Clothing and Gear Insect Repellent (can be ordered from Amazon. com)

SIBO and FODMAPs - What They Mean and How They Affect Your Health (by Jeannie Oliver)

The Essentials of Lyme Disease Prevention (YouTube, Kandice Dickover)

Turmeric Bombs:  DIY Turmeric Supplements

Webinar:  Conversations with Marty Ross, MD, June 17, 2015


July 6:  Strength Within FREE Music Session - 130 - 330 pm in the Cook Street Activity Centre  (380 Cook Street)  Everyone welcome!

July 10:  Understanding Bartonella (Free Webinar from Galaxy Diagnostics) 

July 26:  Victoria Lyme Disease Awareness & Support Group Meeting, 1-3 pm
near Hillside Mall, Victoria. Contact for direction.

October 15 - 18:  ILADS Fundamentals Course and Annual Conference, Fort Lauderdale (Registration is now open)

October 17-18:  Neurovascular Connections - Vancouver 2015

DISCLAIMER:  We are not doctors and as such, do not offer any medical advice.  Please discuss any potential changes to your treatment protocol with your doctor.