Sunday, March 24, 2013

Sunday, March 24th Victoria Lyme Awareness and Support Group MEETING

MEETING:  Sunday, March 24th, 6 to 8 pm, Four Mile Bar & Grill -
Tea Room, 199 Island Highway ,Victoria , BC  250-479-2514
Ask for the TEA room, which is reserved under "Victoria Lyme".  If you
are having dinner, be prepared to order right away. Remember we are
welcome regardless of whether we order food. You can find the menu at Note there are
gluten free options.

DRAFT Agenda
Note that some items may be carried forward to the next meeting to
ensure that members have time to express and address concerns and
*Please let us know if you would like us to add to this agenda by
emailing us at

INTRODUCTIONS. Welcome message.
First time attendees are encouraged to use this time to introduce
themselves and share any issues or ask questions.


1. Lyme Support Library  - our group's library can give you the chance
to read a book and decide if you would like to purchase for your own
personal use, or save your money. Are there any books that anyone
would like to see in the library? Do you have a book or DVD to donate?
$10 to join the library, one book out at a time, to be returned at
next meeting.  Our library books/dvds:

    Beyond Lyme Disease
    Ending Denial:  The Lyme Disease Epidemic
    NEW!! - Healing Lyme, by Stephen Buhner
    It's All in Your Head - Around the World in 80 Lyme Patient Stories
    Living a Healthy Life with Chronic Conditions
    The Top 10 Lyme Disease Treatments
    Treatment of Chronic Lyme Disease
    Under our Skin (DVD)

2.  Update on our new website,  (Dave/Nicole)

3.  Update on the new Complex Chronic Diseases Program.  How to get a referral, 
4.  T-shirts can now be ordered through Merina.  Slogan will read:  
                BC TICKS
            can make you
and will have our group name below.  
Prices and Sizes:  S, M, L, XL ($7.00) and XXL ($11.50)  
DEADLINE for orders will be April 15th.
T-shirts will be ready for pickup at our April 28th meeting.


5.  Lyme Awareness Event - 130 to 330 p.m., Saturday, May 11, 2013 at the
BC Legislature (front entrance).  Set up at 1 p.m.
Committee will report on plans to-date and consultation on additional details. (Dave,
Tara, Merina)
Worldwide Lyme Protest:  
Canada's facebook page:  

6.  Sharing of information from Dr. Jasmine Wong's presentation on March 23rd.
Suggestions for further presentations?  


7.  Recent studies, news, and articles:

a)  FDA warns about Zithromax and risk of fatal heart problems

b)  This Yahoo Group is for those who are pregnant, or are considering pregnancy, and have Lyme Disease.

c)  Lawyer warns government that they may be grossly negligent opening doors
for lawsuits>

d)  Virginia passes law forcing physicians to disclose the limitations of tests 

INFORMAL DISCUSSION (information sharing, support, orientation for
newcomers, questions, ideas for upcoming meetings)

NEXT MEETING will be on April 28th, 2013.