Tea Room, 199 Island Highway ,Victoria , BC 250-479-2514
Ask for the TEA room, which is reserved under "Victoria Lyme". If you
are having dinner, be prepared to order right away. Remember we are
welcome regardless of whether we order food. You can find the menu at
http://www.fourmilehouse.com/restaurant_menu.html. Note there are
gluten free options.
DRAFT Agenda
Note that some items may be carried forward to the next meeting to
ensure that members have time to express and address concerns and
questions.
*Please let us know if you would like us to add to this agenda by
emailing us at victorialyme@gmail.com
INTRODUCTIONS. Welcome message.
First time attendees are encouraged to use this time to introduce
themselves and share any issues or ask questions.
UPDATES
2. Lyme Support Library - our group's library can give you the chance
to read a book and decide if you would like to purchase for your own
personal use, or save your money. Are there any books that anyone
would like to see in the library? Do you have a book or DVD to donate?
$10 to join the library, one book out at a time, to be returned at
next meeting. Our library books/dvds:
Beyond Lyme Disease
Ending Denial: The Lyme Disease Epidemic
Ask for the TEA room, which is reserved under "Victoria Lyme". If you
are having dinner, be prepared to order right away. Remember we are
welcome regardless of whether we order food. You can find the menu at
http://www.fourmilehouse.com/restaurant_menu.html. Note there are
gluten free options.
DRAFT Agenda
Note that some items may be carried forward to the next meeting to
ensure that members have time to express and address concerns and
questions.
*Please let us know if you would like us to add to this agenda by
emailing us at victorialyme@gmail.com
INTRODUCTIONS. Welcome message.
First time attendees are encouraged to use this time to introduce
themselves and share any issues or ask questions.
UPDATES
1. Bill C-442 (National Lyme Disease Strategy) See: http://elizabethmaymp.ca/parliament/publications-parliament/householders/2012/07/17/bill-c-442-a-national-lyme-disease-strategy/ (Dave)
For full wording of bill C 442, go to
http://elizabethmaymp.ca/wp-co2. Lyme Support Library - our group's library can give you the chance
to read a book and decide if you would like to purchase for your own
personal use, or save your money. Are there any books that anyone
would like to see in the library? Do you have a book or DVD to donate?
$10 to join the library, one book out at a time, to be returned at
next meeting. Our library books/dvds:
Beyond Lyme Disease
Ending Denial: The Lyme Disease Epidemic
Healing Lyme, by Stephen Buhner
It's All in Your Head - Around the World in 80 Lyme Patient Stories
Living a Healthy Life with Chronic Conditions
The Top 10 Lyme Disease Treatments
Treatment of Chronic Lyme Disease
Under our Skin (DVD)
3. Our new t-shirts will be distributed at the meeting. If you haven't paid, they are $7.00 each.
DISCUSSION
4. Lyme Awareness Event - 130 to 330 p.m., Saturday, May 11, 2013 at the
4. Lyme Awareness Event - 130 to 330 p.m., Saturday, May 11, 2013 at the
BC Legislature (front entrance). Set up at 1 p.m.
Committee will report on plans to-date and consultation on additional details. (Dave,
Tara, Merina)
Worldwide Lyme Protest: https://www.facebook.com/worldwidelymeprotest.
Canada's facebook page: https://www.facebook.com/WorldwideLymeProtestCanada
Facebook page for the Victoria event:https://www.facebook.com/
5. Under Our Skin - May 7th at the Hillside Senior's Wellness Centre, 7 pm, 1454 Hillside Avenue. Reminder to email WellnessCentreRegistration@viha.ca or telephone 250‐370‐5641 and press ‘2’ to reserve your seats. MC for this event is needed - any volunteers?
INFORMATION
6. Recent studies, news, and articles:
a) Connecticut Student Disabled by Tick-borne Disease on School Trip Wins $41.7M http://www.koskoff.com/In-the-News/Conn-student-disabled-on-school-trip-wins-41-7M.shtml
b) Numerous well-known people with Lyme Disease have been in the news lately, including:
6. Recent studies, news, and articles:
a) Connecticut Student Disabled by Tick-borne Disease on School Trip Wins $41.7M http://www.koskoff.com/In-the-News/Conn-student-disabled-on-school-trip-wins-41-7M.shtml
b) Numerous well-known people with Lyme Disease have been in the news lately, including:
- Yolanda Foster, cast member of "The Real Housewives of Beverly Hills" and wife of Grammy award-winning music producer David Foster, received the Star Light Award from the Lyme Research Alliance on Saturday, April 6. Foster was selected for the honor because she has spoken openly about her struggle with chronic Lyme and her strenuous treatment regimen. (News item from LymeDisease.org) http://lymedisease.org/news/lyme_disease_views/yolanda-gala-speech.html
- NY Mets great and Hall of Fame pitcher Tom Seaver
http://www.nydailynews.com/sports/baseball/mets/madden-tom-nearing-terrific-day-mets-legend-winning-battle-lyme-disease-article-1.1289293
c) Alan MacDonald, MD, has a new website: http://www.alzheimerborreliosis.net
d) Lyme Disease Association, Inc. Conference June 1-2: Register Now
http://www.lymediseaseassociation.org/index.php?option=com_content&view=article&id=1122:lda-lyme-conference-register-now&catid=204:lda-conf-2013&Itemid=711
or http://tinyurl.com/c7svqd2
d) Lyme Disease Association, Inc. Conference June 1-2: Register Now
http://www.lymediseaseassociation.org/index.php?option=com_content&view=article&id=1122:lda-lyme-conference-register-now&catid=204:lda-conf-2013&Itemid=711
or http://tinyurl.com/c7svqd2
e) Penn Researchers Attach Lyme Disease Antibodies to Nanotubes, Paving Way for Diagnostic Device
http://www.upenn.edu/pennnews/news/penn-researchers-attach-lyme-disease-antibodies-nanotubes-paving-way-diagnostic-device
INFORMAL DISCUSSION (information sharing, support, orientation for
newcomers, questions, ideas for upcoming meetings)
NEXT MEETING will be on May 26th, 2013.
http://www.upenn.edu/pennnews/news/penn-researchers-attach-lyme-disease-antibodies-nanotubes-paving-way-diagnostic-device
INFORMAL DISCUSSION (information sharing, support, orientation for
newcomers, questions, ideas for upcoming meetings)
NEXT MEETING will be on May 26th, 2013.
