Saturday, June 15, 2013

Draft Agenda for June 23rd Meeting

NEW MEETING TIME   Meetings are held on the fourth Sunday of each month.  This month we meet on Sunday, June 23rd, from 2 - 4 pm. Coffee and tea are provided free of charge.  Snacks to share are appreciated.  

Note that some items may be carried forward to the next meeting to ensure that members have time to express and address concerns and questions.
*Please let us know if you would like us to add to this agenda by emailing us at


Welcome message to new members.

First time attendees are encouraged to use the first portion of our meeting to introduce themselves, share their concerns, and ask questions.


1. Lyme Support Library  - our group's library can give you the chance to read a book and decide if you would like to purchase for your own personal use, or save your money. Are there any books that anyone would like to see in the library? Do you have a book or DVD to donate?  $10 to join the library, one book out at a time, to be returned at next meeting.  Our library books/dvds:

    Beyond Lyme Disease
    Ending Denial:  The Lyme Disease Epidemic
    Healing Lyme, by Stephen Buhner
    NEW!  Healing Lyme Disease Coinfections - Bartonella & Mycoplasma, by Stephen Buhner
    It's All in Your Head - Around the World in 80 Lyme Patient Stories
    Living a Healthy Life with Chronic Conditions
    The Top 10 Lyme Disease Treatments
    Treatment of Chronic Lyme Disease
    Under our Skin (DVD)

    Books can be borrowed for one month.  Please be courteous and return borrowed books on time as others may be waiting to read them.   

2.  T-shirts - we have a few extra t-shirts left over for sale. (Tara)


3.  New location and meeting time - how does this work for you?

4.  Summer schedule - do we want to have meetings in July and August?

5.  Facebook page for our group.

6.  With less than one year left to negotiate a 2014 Health Accord, the Council of Canadians is asking you to tell your health care story, and send a powerful message to our elected representatives. Use your video camera or webcam and tell them about a great experience you had with public health care and why we need to protect it. Talk about difficulties you had getting care and why we need to strengthen medicare. Talk about gaps in the current system where we need to expand health care. Then email your video to the Council of Canadians’ YouTube channel.  Visit the Council of Canadians website at for more information and to watch other videos.   (Dave)


7.  Recent studies, news, and articles:

a)  Inspiring documentary video about a young freeskier's recovery from Lyme Disease:

b)  Considerations in the Treatment of Lyme Coinfections, by Stephen Buhner:
c)  Atypical Erythema Migrans in Patients with PCR-Positive Lyme Disease

INFORMAL DISCUSSION (information sharing, support, questions, ideas for upcoming meetings)

***NEXT MEETING  2-4 pm on July 28th.