Tuesday, September 17, 2013

MEETING AGENDA – Sunday, September 22nd, 2013


Meetings are held from 2 – 4 pm on the fourth Sunday of each month. 

Please let us know if there is anything you would like us to add to the agenda (news, discussion topic, etc) by emailing us at victorialyme@gmail.com

Some items may be carried forward to the next meeting to ensure that members have time to express and address concerns and questions. 


Welcome message to new members.  The first hour or so of our meetings is for members to introduce themselves, and for new members to share their concerns and ask questions. After a short break, we continue with updates, new discussion items, and informal discussion (information sharing, support, questions, ideas for upcoming meetings etc).


Lyme Support Library
Our group purchases and loans out books and DVDs on Lyme and co-infections.  Cost to join our library is $10.  Items can be borrowed for one month.  Please be courteous and return borrowed books on time.  Donations are always appreciated. Please let us know if there are any books/DVDs that you would like us to order. Currently, we have the following:

Cure Unknown:  Inside the Lyme Epidemic (Revised Edition, 2013), by Pamela Weintraub
Healing Lyme Disease Coinfections – Bartonella & Mycoplasma, by Stephen Buhner
Checklists for Bartonella, Babesia & Lyme Disease, by Dr. James Schaller
Beyond Lyme Disease, by Connie Strasheim
Ending Denial:  The Lyme Epidemic, by Helke Ferrie
Healing Lyme, by Stephen Buhner
It’s All in Your Head – Around the World in 80 Lyme Patient Stories, by PJ Langhoff
Living a Healthy Life with Chronic Conditions (multiple authors)
The Top 10 Lyme Disease Treatments, by Bryan Rosner
Treatment of Chronic Lyme Disease, by Burton A. Waisbren
Under Our Skin (DVD)
Treating Lyme Disease Using Integrative Medicine (5 DVDs)
ILADS Review of Anti-Infective Therapy (pamphlet)

We have ordered a copy of Dr. Richard Horowitz’s new book, Why Can’t I Get Better?  Solving the Mystery of Lyme and Chronic Disease, which will be available in November.

T-shirts and Buttons
We have a few extra t-shirts for sale (Tara) and more of Parker (Sparky) Goertzen’s buttons for sale (Dave).

Facebook (Ryan)
Our facebook group for people with Lyme disease on Vancouver Island is a great way to keep up to date on news and connect with others.  Ask to join the Victoria Lyme Group. The group is private – others can see who the members are, but only members can post and read posts, invite and approve new members. 

Bill C-442, National Lyme Disease Strategy (Dave)

Complex Chronic Diseases Program (Chris)
Update on the controversy surround the program, and report regarding the Open House held on September 12th
 Printed Resources (Ryan) 
Some of the printed resources we place out at our meetings are getting low.  Discuss whether to replenish (are they useful), which items to replenish, and covering the cost.

Annual Fee for our Blog (Dave)
Need donations to cover the annual fee for our blog ($20).

Online Resources (Ryan) 
Share your best online resources for Lyme treatment, news, facebook groups, etc.

INFORMATION – Recent studies, news, articles, upcoming events and useful websites
 1.     Lyme Less Live More – a series of online presentations beginning on September 18th.  See http://lymelesslivemore.com/
2.    CDC updates estimate of Americans diagnosed with Lyme Disease  http://www.cdc.gov/media/releases/2013/p0819-lyme-disease.html  
3.    Vancouver Sun article on CCDP:  New Vancouver clinic takes a bite out of chronic disease  http://www.vancouversun.com/health/story.html?id=8895285&fb_comment_id=fbc_534341823301996_14924004_534431299959715#f1c4e88958
4.    Times Colonist article about the CCDP:  http://www.timescolonist.com/lyme-disease-clinic-a-waste-group-says-1.605168 
5.    Listen to David Cubberley on the CBC:  http://www.cbc.ca/ontheisland/2013/08/30/helping-people-with-lyme-disease/
7.    Article on Methylation by Dr Suzy Cohen:  http://www.dearpharmacist.com/2013/08/08/2394/

NEXT MEETING:  Sunday, October 27th, 2013