Monday, July 28, 2014

Recent Lyme News

RESEARCH AND JOURNAL ARTICLES

Scientist Finds Link Between Antibiotics, Bacterial Biofilms, and Chronic Infections  (Phys Org)  http://phys.org/news/2014-07-scientist-link-antibiotics-bacterial-biofilms.html  (original article from PLOS ONE below)

Beta-Lactam Antibiotics Stimulate Biofilm Formation in Non-Typeable Haemophilus Influenzae by Up-Regulating Carbohydrate Metabolism  (PLOS ONE)  http://www.plosone.org/article/info%3Adoi/10.1371/journal.pone.0099204

New Insight in the Mechanism of Accumulation and Intraerythrocytic Compartmentation of Albitiazolium - a New Type of Antimalarial  (Antimicrobial Agents and Chemotherapy)  http://aac.asm.org/content/early/2014/07/02/AAC.00040-14

Bartonellosis:  One Health Perspectives for an Emerging Infectious Disease  (ILAR Journal)  http://ilarjournal.oxfordjournals.org/content/55/1/46.abstract

Divergent Opinions of Proper Lyme Disease Diagnosis and Implications for Children Co-morbid with Autism Spectrum Disorder  (Medical Hypotheses)  http://www.medical-hypotheses.com/article/S0306-9877%2814%2900233-3/abstract

Determination of Babesia microti Seroprevalence in Blood Donor Populations using an Investigational Enzyme Immunoassay (TransfusioN)  http://onlinelibrary.wiley.com/doi/10.1111/trf.12763/abstract;jsessionid=310A34FA6545D1266D5CC8233A433C9E.f02t01

Lyme Disease Testing by Large Commercial Laboratories in the United States  (Clinical Infectious Diseases)  http://cid.oxfordjournals.org/content/early/2014/07/06/cid.ciu397

Identification of Novel Activity Against Borrelia burgdorferi Persisters Using an FDA Approved Drug Library  (Emerging Microbes and Infections)  http://www.nature.com/emi/journal/v3/n7/full/emi201453a.html

Lyme Disease-induced Polyradiculopathy Mimicking Amyotrophic Lateral Sclerosis (ALS)  (Pub-Med.gov)  http://www.ncbi.nlm.nih.gov/pubmed/24397499


LYME POLITICS
 AND CONTROVERSIES

CDC Debunked!  (What is Lyme Disease)  http://whatislyme.com/cdc-debunked/

Resurrecting the LYMErix 'Yuppie Vaccine'   (Nature Medicine)  http://www.nature.com/nm/journal/v20/n7/full/nm0714-698.html

Gripping Speech by Husband of Lyme Disease Victim - Strong Condemnation of Canadian Health Care (CanLyme.com  YouTube Video - from Lyme Awareness Event in Sechelt, BC in June 2014)  http://canlyme.com/2014/07/08/gripping-speech-by-husband-of-lyme-disease-victim-strong-condemnation-of-canadian-health-care/

Soldier with Lyme Disease Fights Canadian Forces (Sun News)  http://www.sunnewsnetwork.ca/sunnews/canada/archives/2014/07/20140702-160206.html

New Law Aims to Fight Tick-borne Diseases  (Philly.com)  http://articles.philly.com/2014-06-28/news/50914960_1_lyme-disease-task-force-ticks

Will Governor Cuomo Sign or Veto NY Lyme Bill?  (LymeDisease.org)  http://lymedisease.org/news/lyme_disease_views/will-cuomo-sign-lyme-bill.html

IDSA Says Yes, Then No, to Lyme Protesters' Request (LymeDisease.org)   http://lymedisease.org/news/lyme_disease_views/news-idsa-says-yes-then-no-to-lyme-protesters-request.html

LYMEPOLICYWONK: The bogus grassroots of the American Lyme Disease Foundation (LymeDisease.org)  http://lymedisease.org/news/lymepolicywonk/lymepolicywonk-the-bogus-grassroots-of-the-american-lyme-disease-foundation.html

LYMEPOLICYWONK: The IDSA Says Chronic Lyme Disease Is No More than the Aches and Pains of Daily Living. Is this True?  (LymeDisease.org)  http://lymedisease.org/news/lymepolicywonk/lymepolicywonk-the-idsa-says-chronic-lyme-disease-is-no-more-than-the-aches-and-pains-of-daily-living-is-this-true.html

LYMEPOLICYWONK: Patient-Powered Research and Lyme Disease  (LymeDisease.org)  http://lymedisease.org/news/lymepolicywonk/lymepolicywonk-patient-powered-research-and-lyme-disease.html

OTHER NEWS, REPORTS & STORIES

Seven Reasons Why Disabled Canadians are Losing CPP Benefits (Globe and Mail)  http://www.theglobeandmail.com/globe-debate/seven-reasons-why-disabled-canadians-are-losing-cpp-benefits/article19630200/

and a previous article:

Lyme Disease in Horses:  More Questions than Answers (The Horse)  http://www.thehorse.com/articles/34210/lyme-disease-in-horses-more-questions-than-answers

Tick Experiment That'll Blow Your Mind  (North American Hunter)  http://hunting.scout.com/story/1411042-tick-experiment-that-ll-blow-your-mind

TOUCHED BY LYME: Jesse Colin Young “got brain back” after Lyme treatment (LymeDisease.org)  http://lymedisease.org/news/touchedbylyme/jesse-colin-young.html

Lyme Disease in Alberta (Video - Alberta Primetime)  http://www.albertaprimetime.com/Stories.aspx?pd=6721
Beating Lyme Disease  (Experience Life)  http://experiencelife.com/article/beating-lyme-2/

When Not Feeling Like Yourself Can be Life-threatening  (Cosmopolitan)  http://www.cosmopolitan.com/health-fitness/news/a28781/medical-mystery-lyme-disease/

Ticked Off:  The Mystery of Lyme Disease - Dr Eric Chan (The Nature of Things) (Not new but it hasn't been posted before)   http://www.cbc.ca/player/Shows/Shows/The+Nature+of+Things/Extras/ID/2408817952/

Health:  A Growing Problem in our Area Leaves Man Trapped in Own Body (Video - CBS Philadelphia)  http://philadelphia.cbslocal.com/2014/07/07/health/

How a Rock Musician Inspired One Family Dealing with Lyme Disease (Huffington Post)  http://www.huffingtonpost.com/john-mccormick/how-a-rock-musician-inspi_b_5559967.html

Tick Bite Leads to Food Allergy for Durham Woman  (WRAL.com)  http://www.wral.com/tick-bite-leads-to-food-allergy-for-durham-woman/13789822/

A cute cartoon because sometimes we need to laugh (Lyme Disease Association of Alberta)  https://www.facebook.com/photo.php?fbid=516406055127525&set=a.359695337465265.1073741828.352386944862771&type=1&fref=nf

RESOURCES

TOUCHED BY LYME: Managing chronic Lyme? There’s an app for that…. (LymeDisease.org)  http://lymedisease.org/news/touchedbylyme/phone-apps-for-lyme.html

Mycoplasma (Stop the Lyme Lies)
  http://www.stopthelymelies.com/co-infections/mycoplasma
Bartonella (Stop the Lyme Lies)  http://www.stopthelymelies.com/co-infections/bartonella-bartonellosis

Recall Issued for 5 Prescription Drugs in Canada  (MSN Canada News)  http://news.ca.msn.com/canada/recall-issued-for-5-prescription-drugs-sold-in-canada-1#scpshrjwfbs

Chronic Lyme Disease:  What you Need to Know (Dr Richard Horowitz on the Today Show)  http://www.today.com/klgandhoda/chronic-lyme-disease-what-you-need-know-1D79878631

Mycoplasma and Lyme Cases that Don't Resolve (Audio - Dr Wayne Anderson, ND)  http://www.gordonmedical.com/unravelling-complex-chronic-illness/mycoplasma-and-lyme-cases-that-dont-resolve/

A Beginner's Guide to Lyme Disease (The Nature of Things - CBC)  http://www.cbc.ca/natureofthings/features/beginners-guide-to-lyme-disease

2013 ILADS San Diego Lyme Disease Conference CD   http://ilads.org/ilads_media/2013-sandiego-conference-cd/

UPCOMING EVENTS

July 27:  Support group meeting in Victoria, 1 to 4 pm; Presentation by Emma Wilson-Pease, graduate student, on her Lyme research at 1 pm, meeting to follow at 2 pm.  1454 Hillside Avenue 

September 13:  Overview of the Fundamentals of Diagnosis & Treatment of Lyme Disease and Co-infections with an Emphasis on Neuropsychiatric Issues (ILADS half-day course for physicians at Monmouth University, NJ)


October 10-12:  ILADS 15th Annual Scientific Conference: Neurological Spectrum (Washington DC)  http://www.ilads.org/lyme_programs/washingtondc/ilads-washingtondc-lyme-conference.php


Friday, July 18, 2014

AGENDA – Sunday, July 27, 2014

MEETING TIME AND LOCATION
We will have a presentation from 1 pm to 1:45 pm and our regular meeting will be from 2 pm until 4 pm. 
Coffee and tea are provided free of charge.  Snacks to share are always appreciated.
Please let us know if there is anything you would like us to add to the agenda (news, discussion topic, etc) by emailing us at victorialyme@gmail.com
PRESENTATION - 1:00 pm to 1:45 pm
Emma Wilson-Pease, a student at Mount Allison University in New Brunswick, will give a presentation on an interesting report she wrote last year, An Exploratory Study: Examining the Economic Cost of Lyme Disease in New Brunswick, and will tell the group about her thesis (she begins grad studies in September) which will be about Lyme disease and the forest industry.  Please give her a warm welcome.  
INTRODUCTIONS & SUPPORT FOR NEW MEMBERS - 2:00 pm to 3:00 pm
Welcome message to new members.  This part of our meetings is for members to introduce themselves, to share their concerns and ask questions. 
NEW ITEMS and UPDATES- 3:15 pm to 4:00 pm
New Items 
1.   Complex Chronic Diseases Program - the program has a temporary director, Dr Hyams, and they are continuing to see patients, however, there has been no change to their policy of not prescribing antibiotics to people with Chronic Lyme.  
2.   Charges for tick tests at the BC CDC from veterinarians.  $30 to identify a tick, and and additional $35 for testing (up to five ticks). Alternatively, you can send ticks from animals to Janet Sperling for free (see below).  You are welcome to take a few of Janet's tick kits in to your vet.  
3.  T-shirts - our Let's Talk About Lyme t-shirts are in demand - an additional 42 were ordered and delivered to people on the mainland.  Many of them will be given to supportive MLAs.  We'll have more t-shirts for sale for our group in August.   
4.  Meeting with Your MLA - please make an effort to set up an appointment with your MLA to share your experiences with Lyme disease, and to ask for a commitment from them to address the issues that we face.  If you're unable to meet, please consider sending them an email.  (See our previous email dated July 11)
5.  Information table at outdoor markets - we rented a table at the Oaklands Sunset Market on July 16 and distributed about 60 brochures.  There was a lot of interest.  The rental was only $20 so this is an economical and personal way to reach people.  We will book another one in August at a different venue.  
Lyme Support Library
Our group purchases and loans out books and DVDs on Lyme and co-infections.  Cost to join our library is $10.  Items can be borrowed for one month.  Please be courteous and return borrowed books on time.  Book donations are always appreciated. Please let us know if there are any books/DVDs that you would like us to order.  Currently, we have the following:
1.  Cure Unknown:  Inside the Lyme Epidemic (Revised Edition, 2013), by Pamela Weintraub
2.  Healing Lyme Disease Coinfections – Bartonella & Mycoplasma, by Stephen Buhner
3.  Checklists for Bartonella, Babesia & Lyme Disease, by Dr. James Schaller
4.  Beyond Lyme Disease, by Connie Strasheim
5.  Ending Denial:  The Lyme Epidemic, by Helke Ferrie
6.  Healing Lyme, by Stephen Buhner
7.  It’s All in Your Head – Around the World in 80 Lyme Patient Stories, by PJ Langhoff
8.  Living a Healthy Life with Chronic Conditions (multiple authors)
9.  The Top 10 Lyme Disease Treatments, by Bryan Rosner
10.Treatment of Chronic Lyme Disease, by Burton A. Waisbren
11.Under Our Skin (DVD)
12.Treating Lyme Disease Using Integrative Medicine (5 DVDs)
13. ILADS Review of Anti-Infective Therapy (pamphlet)
14. Why Can’t I Get Better?  Solving the Mystery of Lyme and Chronic Disease by Dr. Horowitz (2 copies)
15. Ticked Off:  The Mystery of Lyme Disease (DVD) 
Facebook  
Our Facebook group for people with Lyme disease on Vancouver Island is a great way to keep up to date on news and connect with others.  Log into Facebook, search for the Victoria Lyme Group, and ask to join. The group is private – others can see who the members are, but only members can post and read posts, invite, and approve new members.   
Tick Survey 
Dr Ernie Murakami asks that anyone who has removed a tick from a human send them to him. He wants them whether dead or alive along with a brief note on how the tick was removed, i.e. twisted out, tweezers with constant tension or by tension/relax method. These ticks will be checked by microscopy for missing mouth parts and research. Send your ticks, from anywhere at all, to him at: 
Box 1240, 
Hope BC V0X 1L0
Tick Collection for Researcher Janet Sperling
Janet Sperling has sent us some tick collection vials, complete with prepaid envelopes to mail live ticks.  She is doing research on ticks in Canada and would be happy to receive live ticks that you find on your dog, in the environment, or crawling on you (ticks cannot be feeding on you - those must go to the BC CDC).  You will receive a list of the bacteria your tick is carrying, although it may take awhile as she does them in batches. 

NEXT MEETING:  Sunday, August 24th, 2014  
_________________________________________
INFORMATION 
Keep up with the latest Lyme news: 

Tuesday, July 1, 2014

Recent Lyme Research, Politics, News and Events

RESEARCH AND JOURNAL ARTICLES

New insights into stages of Lyme disease symptoms from a novel hospital-based registry (Journal of Primary Care and Community Health)  http://jpc.sagepub.com/content/early/2014/06/24/2150131914540693.short

Bacterial tick-borne diseases caused by Bartonella spp., Borrelia burgdorferi sensu lato, Coxiella burnetii, and Rickettsia spp. among patients with cataract surgery (Medical Science Monitor)  http://www.medscimonit.com/abstract/index/idArt/890149

DNA Sequencing Diagnosis of Off-Season Spirochetemia with Low Bacterial Density in Borrelia burgdorferi and Borrelia miyamotoi Infections (International Journal of Molecular Sciences) - see attached .pdf

Granulomatous hepatitis associated with chronic Borrelia burgdorferi infection: a case report (Labome.org)  http://www.labome.org/research/Granulomatous-hepatitis-associated-with-chronic-Borrelia-burgdorferi-infection-a-case-report.html

Researchers find bacteria able to change dormancy time to withstand antibiotic drugs 
(Phys.org) (research was on E coli, but is interesting) http://m.phys.org/news/2014-06-bacteria-dormancy-antibiotic-drugs.html

28 Peer-reviewed articles on Congenital Transmission of Lyme/TBD  (See attachment)
Increased diversity of zoonotic pathogens and Borrelia burgdorferi strains in established versus incipient Ixodesscapularis populations across the Midwestern United States  (Infection, Genetics and Evolution) http://www.sciencedirect.com/science/article/pii/S1567134814002068
Suspected inflammatory cardiomyopathy (Springer.com)  http://link.springer.com/article/10.1007/s00059-014-4118-x
Gastrointestinal and hepatic manifestations of tickborne disease in the United States (Oxford Journals)  http://cid.oxfordjournals.org/content/34/9/1206.full.pdf
Simple objective detection of human Lyme disease infection using immuno-PCR and a single recombinant hybrid antigen  (American Society for Microbiology)  http://cvi.asm.org/content/early/2014/06/03/CVI.00245-14.short
LYME POLITICS


Expert who first spotted Lyme in ticks calls 'Chronic' Lyme over diagnosed (Here and Now)  (Interview of Allan Steere on NPR) http://hereandnow.wbur.org/2014/06/24/chronic-lyme-overdiagnosed-steere  (Read the comments too)

Special Webinar on Lyme Disease and Borrelia Persistence (HHS Working Group on Lyme and other Tick-Borne Diseases)  http://www.cdc.gov/lyme/pdfs/PersistenceWebinarSlides.pdf
Letter from Perry Kendall to a Lyme Patient re: BC CDC (June 24, 2014)  - See attached.

BC has failed Lyme disease patients (Letter to Editor from Chris Powell in the Victoria Times Colonist, June 22, 2014)  http://www.timescolonist.com/opinion/letters/b-c-has-failed-lyme-disease-patients-1.1138563
A welcome step in the right direction (Letter to Editor from Emma Wilson-Pease in theTimes Colonist, June 21, 2014)  http://www.timescolonist.com/opinion/letters/a-welcome-step-in-the-right-direction-1.1138466

Comment:  BC needs to move ahead on Lyme disease (Gwen Barlee, Times Colonist, June 18, 2014)  http://www.timescolonist.com/opinion/op-ed/comment-b-c-needs-to-move-ahead-on-lyme-disease-1.1133541

CDC:  Lyme Disease Test Raises Concerns  (JAMA)  http://jama.jamanetwork.com/article.aspx?articleID=1881328
Dr Liz Zubek's public resignation from the Complex Chronic Disease Program (See attached)

A Vancouver doctor who was paid about $5000 a week but saw only one patient a week.  Really?  (Vancouver Sun) http://blogs.vancouversun.com/2014/06/15/a-vancouver-doctor-who-was-paid-about-5000-a-week-but-saw-only-one-patient-a-week-really/

OTHER NEWS, REPORTS & STORIES

10 year-old quadruplets from BC all diagnosed with Lyme disease  (The Province)  http://www.theprovince.com/health/10yearold+quadruplets+from+diagnosed+with+Lyme+disease/9974568/story.html

Persistent Lyme infection may cause hepatitis  http://lymedisease.org/news/lyme_disease_views/lyme-hepatitis.html

Babesia odocoilei recently detected in Canada (HealthyWildlife.ca)  http://www.healthywildlife.ca/babesia-odocoilei-recently-detected-in-canada/

LIsten to an interview of Gwen Barlee by Ian Jessop's on CFAX Radio, June 23rd, 2014 (Click on the soundtrack bar at the top, interview starts at 33 min, 15 seconds)  https://soundcloud.com/ian-jessop-cfax/june-23-2pm?in=ian-jessop-cfax%2Fsets%2Fian-jessop


Lucky in Lyme, by LIsa Robertson (CanLyme)  http://canlyme.com/2014/06/18/lucky-in-lyme/  (Note:  Lisa Robertson is an author from Alberta)

Dr Jemsek and Dr Horowitz featured in Lyme Lights story (ILADS)  http://www.ilads.org/ilads_news/2014/dr-jemsek-and-dr-horowitz-featured-in-lyme-light-story/

Ticks crawl north, bringing threat of Lyme disease (Edmonton Journal)  http://www.edmontonjournal.com/news/edmonton/Ticks+crawl+north+bringing+threat+Lyme+disease/9948315/story.html

Views:  Give Lyme victims same rights as other patients  (Poughkeepsie Journal)  http://www.poughkeepsiejournal.com/story/opinion/valley-views/2014/06/14/lyme-disease-patients-chronic/10533911/


RESOURCES

Listen to the audio version of Dr Richard Horowitz's book, Why Can't  I Get Better?  from our local library  (Hoopla Digital) https://www.hoopladigital.com/title/11046378  

Tick Identification Guide (University of Rhode Island)  http://www.tickencounter.org/tick_identification/guide
Lyme Disease Testing:  Bob Giguere from iGeneX (YouTube Video, July 2013)  https://www.youtube.com/watch?v=tqr2gTCnqvY&feature=youtu.be

Conversations with Dr Marty Ross - Free Webinars  http://www.treatlyme.net/marty-ross-md-conversations/
What is Lyme Disease?  (YouTube Video by Lyme Disease Network)  https://www.youtube.com/watch?v=tX70ivbRyJ4&feature=youtu.be

Vanessa Farnsworth on Lyme Disease in Canada (Video)  http://www.orchardtv.com/vanessafarnsworth/

UPCOMING EVENTS

July 6:    Informal support meeting 1 pm at Serious Coffee, 2401 Millstream Rd, Langford

July 10:  CBC will air Ticked Off:  The Mystery of Lyme Disease at 8 pm  http://www.cbc.ca/natureofthings/episodes/ticked-off-the-mystery-of-lyme-disease

July 12:  Support group meeting in Parksville, 1:30 pm at the Pharmasave meeting room

July 27:  Support group meeting in Victoria, 1 to 4 pm; Presentation by Emma Wilson-Pease, graduate student, on her Lyme research.  1454 Hillside Avenue 


Tuesday, June 17, 2014

AGENDA – Sunday, June 22nd, 2014

MEETING TIME AND LOCATION
This month we will have a video presentation from 1 pm to 1:45 pm and our regular meeting will be from 2 pm until 4 pm.
For location and directions, or any additions to the agenda (news, discussion topic, etc) please email us at victorialyme@gmail.com
AGENDA
VIDEO PRESENTATION - 1:00 pm to 1:45 pm
Dr Richard Horowitz is interviewed about Lyme and Thyroid Disease.  This video is from the recent online Thyroid Summit.
INTRODUCTIONS & SUPPORT FOR NEW MEMBERS - 2:00 pm to 3:00 pm
Welcome message to new members.  This part of our meetings is for members to introduce themselves, to share their concerns and ask questions. 
NEW ITEMS and UPDATES- 3:15 pm to 4:00 pm
New Items 
1.   Complex Chronic Diseases Program
2.   Update on Bill C-442, Federal Framework for Lyme Disease.  Please consider writing a letter to the BC Senators asking for their support of this bill.  To find their names and contact info, see:   http://www.parl.gc.ca/SenatorsMembers/Senate/SenatorsBiography/isenator.asp?sortord=P&Language=E#ProvBC 
3.   Summer meetings and awareness activities

Lyme Support Library
Our group purchases and loans out books and DVDs on Lyme and co-infections.  Cost to join our library is $10.  Items can be borrowed for one month.  Please be courteous and return borrowed books on time.  Book donations are always appreciated. Please let us know if there are any books/DVDs that you would like us to order.  Currently, we have the following:
1.  Cure Unknown:  Inside the Lyme Epidemic (Revised Edition, 2013), by Pamela Weintraub
2.  Healing Lyme Disease Coinfections – Bartonella & Mycoplasma, by Stephen Buhner
3.  Checklists for Bartonella, Babesia & Lyme Disease, by Dr. James Schaller
4.  Beyond Lyme Disease, by Connie Strasheim
5.  Ending Denial:  The Lyme Epidemic, by Helke Ferrie
6.  Healing Lyme, by Stephen Buhner
7.  It’s All in Your Head – Around the World in 80 Lyme Patient Stories, by PJ Langhoff
8.  Living a Healthy Life with Chronic Conditions (multiple authors)
9.  The Top 10 Lyme Disease Treatments, by Bryan Rosner
10.Treatment of Chronic Lyme Disease, by Burton A. Waisbren
11.Under Our Skin (DVD)
12.Treating Lyme Disease Using Integrative Medicine (5 DVDs)
13. ILADS Review of Anti-Infective Therapy (pamphlet)
14. Why Can’t I Get Better?  Solving the Mystery of Lyme and Chronic Disease by Dr. Horowitz
15. Ticked Off:  The Mystery of Lyme Disease (DVD) 
T-shirts
We have extra t-shirts for sale!  Price is $10.
Facebook  
Our Facebook group for people with Lyme disease on Vancouver Island is a great way to keep up to date on news and connect with others.  Log into Facebook, search for the Victoria Lyme Group, and ask to join. The group is private – others can see who the members are, but only members can post and read posts, invite, and approve new members.   
Tick Survey 
Dr Ernie Murakami asks that anyone who has removed a tick from a human send them to him. He wants them whether dead or alive along with a brief note on how the tick was removed, i.e. twisted out, tweezers with constant tension or by tension/relax method. These ticks will be checked by microscopy for missing mouth parts and research. Send your ticks, from anywhere at all, to him at:
Box 1240, 
Hope BC V0X 1L0
Tick Collection for Researcher Janet Sperling

Janet Sperling has sent us some tick collection vials, complete with prepaid envelopes to mail your ticks.  She is doing research on ticks in Canada and would be happy to receive ticks that you find on your dog, in the environment, or crawling on you (ticks cannot be feeding or engorged though).  You will receive a list of the bacteria your tick is carrying, although it may take awhile as she does them in batches.

NEXT MEETING:  Sunday, July 27th, 2014  
_________________________________________
INFORMATION 
Keep up with the latest Lyme news: